Tuesday, 3 August 2010

What is Ehlers Danlos Syndrome?

Ehlers Danlos Syndrome - ABC Preferred Olivia Court who was born with a severe form of Ehlers Danlos Syndrome, which she first years of her life can not run, jump or even walk, but thanks to a revolutionary 'second skin' suit, the three -year-old British toddler can now run and play like other children her age.


Ehlers Danlos Syndrome What is EDS? It is a rare genetic disorder that caused hyper-flexible joints - knees and hips so flexible that would disrupt regular painful when trying to run. EDS affects the body's ability to build collagen. While most people associate with youthful-looking skin collagen, the naturally occurring proteins are also essential for the structure of ligaments, blood vessels and other body tissue structures.

Collagen is the glue that holds your cells together, and if it is missing, with Ehlers-Danlos syndrome suffer overly mobile joints, super stretchy, paper-thin skin, easy ligament tears and fractures in their internal organs and blood vessels.

However, when wearing a revolutionary custom-made lycra suit, are Olivia's spine and joints enough to prevent dislocation supported. Her doctors are quoted in the British press as saying they hope the suit is her muscles to grow strong enough to support her joints one day on their own.

Lynn Sanders (pictured above), 52, founder of the Ehlers-Danlos Syndrome Network CARES, Inc. in Wisconsin, also suffers from a similar form of Olivia's disorder, better known as hypermobility EDS.

407 comments:

  1. thanks for the info and explanation provided

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  2. Nice info, it will help me and maybe others knowing about what is Ehlers Danlos Syndrome.

    Happy to meet you :)

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  3. More advanced age, this type of disease is increasing. But with many new technological discoveries, everything is easily solved

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  4. top gan... infonya manfaat banget buat aku???

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  5. gretings,
    niice psot .
    thanks for share .

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  6. salam kenal ja bro
    untuk u thanks

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    for u
    smoga dlam keadaan sehat

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  8. salam kenal .
    artikelnya bagus .
    sukses yaa .

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  9. ne dia yang di cari2
    harus di sebar luaskn ne

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  15. ternyata ada juga sindrom seperti itu
    terima kasih infonya

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  16. slam kenal ja
    good luck........

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  17. oh gitu berarti kolagen sangat penting yach.
    makasih atas infonya....

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  18. Lately, many new physical disorders revealed. what may cause these? I wish the medical research will help to overcome it.

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  19. makasih gan buat infonya semoga bermanfaat gan ssaalma kenal aja gan

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  20. salam kenal .
    makasih buat infonya .

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  21. gan boleh minta tuker link nggak???
    pasangnya di sidebar blog kita masing2....
    confirm dg comment di blog saya.....makasih

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  22. veri nice info.....sangat membantu :) blognya juga bagus banget ni..

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  23. info yang keren dan menarik,,moga bermanfaat buat smuanya,,makasih dan sukses slalu,,

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  24. keep blogging moga jadi ilmu yang berguna,,,

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  25. mengenai info bloging sangt bermanfaat untuk semuanya apalagi klo ditambah artikelnya lebih banyak lagi.makasih sekali dan lamkenal.klo kurang harus segera di obati mantap.

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  26. artikel'y baguz sekli,
    skss trz ya....

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  27. masukan bagus ,sangat bermanfaat sekali,makasih dan sukses trus,,

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  28. Nice info, it will help us and maybe others knowing about what Ehlers Danlos Syndrome is.

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  29. nice share brow.. :) bw
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  30. I have never knew that colagen is so important...

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  31. nice info.
    thanks for sharing..
    salam kenal ya...!

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  32. nice info thanks for information,,

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  33. articles you contributed at your blog is very useful to me, keep the spirit, and good luck

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  34. terima kasih atas infonya..
    salam kenal..

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  35. kok malah dipersilahkan spam sih bos??
    hehehehe...

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  36. i just knew that the EDS has significant effect on collagen :D great post anyway

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  37. Excellent post. I really appreciate you for doing this job... keeps it up so i can do comments on your post. Thanks :)

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  38. rrr, the impact of the syndrome made me frighten..
    well done, but is the syndrome can be treated??

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  39. nice info...thanks ...sukses selalu

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  44. infonya bagus and salam kenal si pendatang baru.

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  45. ini kalo gak salah syndrome ketek bau ya? temen saya ada yg kena lho ini keteknya jadi bau mayat.

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  46. wahh?? penyakit apa lagi nih?? hehehe

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  47. artikel yang bermanfaat,terimakasih udah di share,,jadi tau nih

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  48. mantap nie artikel nya sangat menarik dan sangat bagus nie.....

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  49. terima kasih atas infonya...
    menarik untuk di baca...

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  50. walaupun english saya kurang baik dan benar tapi isi blog ini pastinya menarik banget... banyak yang komen sih.

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  51. makasih atas info nya sangat menarik nie.......

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  52. I really believe the only way to stay healthy is to eat properly, get your rest and exercise. If you don't exercise and do the other two, I still don't think it's going to help you that much.

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  77. Ehlers Danlos Syndrome is genetic problem and create a lot of issues for patients.

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  85. makasih banyak info nya kawan,,,,,
    dan salam kenal aja ,,,,,,,

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  86. rare genetic disorder that caused hyper-flexible joints - knees and hips so flexible that would disrupt regular painful when trying to run. EDS affects the body's ability to build collagen....interesting

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  89. infonya bagus bangt gan, makasih atas infonya gan,,,,,,

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  90. thanks buat infonya... bermanfa'at banget sob salam kenal saja!!!

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    tapi coba ane translate ajah yaa

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  93. terimakasih atas semua infonya,,,,

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  95. Ehlers Danlos Syndrome baru denger saya

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  96. oh gtu y ....
    thanks bwt info'y ....

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  99. Terima kasih atas infonya...
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  100. terima kasih atas informasinya... Sangat bermanfaat.. salam kenal Pak

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  103. Thanks for info about Ehlers Danlos Syndrome.Nice article my friend :)

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  104. oke juga nie sangat bagus dan sangat menarik info nya makasih,,,,,,,

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  109. Hi
    What is Ehlers Danlos Syndrome?
    i would like to say thank you about this cool post, and this idea very helpful to me,
    Thank You

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  110. thx gan info nya
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  112. well .. jadi tau deh ilmu kedokteran .. EDS a.k.a Ehlers Danlos Syndrome .. sayang gak ada gambar indikator pendukung dari penjelasan artikel diatas biar lebih perfect. tapi tetep artikel ini udah ok. kenapa? karena saya jadi tau syndrome yang baru muncul baru2 ini ..

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  113. aduuh gan,,,ane kagak ngerti,,tp ane pingin bngt koment di post agan,,,boleh yaa,,,
    thx U..

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