Ehlers Danlos Syndrome - ABC Preferred Olivia Court who was born with a severe form of Ehlers Danlos Syndrome, which she first years of her life can not run, jump or even walk, but thanks to a revolutionary 'second skin' suit, the three -year-old British toddler can now run and play like other children her age.
Ehlers Danlos Syndrome What is EDS? It is a rare genetic disorder that caused hyper-flexible joints - knees and hips so flexible that would disrupt regular painful when trying to run. EDS affects the body's ability to build collagen. While most people associate with youthful-looking skin collagen, the naturally occurring proteins are also essential for the structure of ligaments, blood vessels and other body tissue structures.
Collagen is the glue that holds your cells together, and if it is missing, with Ehlers-Danlos syndrome suffer overly mobile joints, super stretchy, paper-thin skin, easy ligament tears and fractures in their internal organs and blood vessels.
However, when wearing a revolutionary custom-made lycra suit, are Olivia's spine and joints enough to prevent dislocation supported. Her doctors are quoted in the British press as saying they hope the suit is her muscles to grow strong enough to support her joints one day on their own.
Lynn Sanders (pictured above), 52, founder of the Ehlers-Danlos Syndrome Network CARES, Inc. in Wisconsin, also suffers from a similar form of Olivia's disorder, better known as hypermobility EDS.